The Living Wall

The Living Wall Campaign aims to challenge all of us to ask ourselves what we would do “if I had one more day to live…”; in the hope of encouraging all to capture the preciousness of today and appreciating that for every day that we take for granted may be a day that a child living with life‐limiting condition does not live to see.

The vision of The Living Wall is to help give voice to the children living with life­limiting conditions to ensure that palliative care is available and accessible. Its mission is to forge solidarity amongst youth globally to raise awareness of the plight of children living with life­limiting conditions and the role of palliative care to improve the quality of the remaining days of their life.

The Living Wall Website

 

10. October 2015 International hospice and palliative care services

World Hospice and Palliative Care day is a unified day of action to celebrate and support hospice and palliative care around the world. It is an opportunity to raise awareness, improve access to palliative care and medications and raise funds for hospice and palliative care in your country or region. On the first World Hospice and Palliative Care Day in 2005, there were over 1,100 events in 74 countries and thousands of people from 128 countries around the world signed a global petition calling for better quality care for those affected by terminal illness.
Why do anything for World Hospice and Palliative Care Day?
Globally uniting around the world for one day to raise awareness of one issue can

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PremiĂšres Rencontres Francophones sur le RĂ©pit

In Frankreich werden immer mehr Familien mit der Pflege eines schwerkranken und behinderten Verwandten zu Hause konfrontiert. Die medizinische Versorgung, die den Patienten zur VerfĂŒgung gestellt wird und die menschliche UnterstĂŒtzung fĂŒr kranke Menschen und ihre Betreuer, ist bis heute nicht ausreichend. Das hat schwerwiegenden Folgen auf Familie wie Beruf und kann zu sozialer und körperlicher Erschöpfung fĂŒhren. Hier veröffentlichen wir die KonferenzbroschĂŒre zum Kongress "PremiĂšres Rencontres Francophones sur le RĂ©pit" vom 3. und 4. November 2014 mit einem Beitrag von Sabine Kraft ĂŒber die Situation der Kinderhospizarbeit in Europa auf Seite 20.

En France, des familles toujours plus nombreuses sont confrontĂ©es Ă  la prise en charge d’un proche gravement malade et invalide Ă  domicile. Si les soins mĂ©dicaux apportĂ©s au patient se dĂ©veloppent en quantitĂ© et en qualitĂ©, l’accompagnement humain des personnes malades, mais surtout de leurs proches aidants, reste aujourd’hui largement insuffisant. Nous connaissons les consĂ©quences lourdes de ces prises en charge pour les aidants, sur le plan familial, professionnel et social, et les situations d’épuisement physique et psychologique qui peuvent en rĂ©sulter. Nous publions ici la brochure de la confĂ©rence "PremiĂšres Rencontres Francophones sur le RĂ©pit, Centre de congrĂšs de Lyon, 3 et 4 novembre 2014" avec un article de Sabine Kraft dĂ©crivant la situation dans les centres de soins palliatifs pour enfants en Allemagne Ă  la page 20.

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2nd ICPCN Conference in Argentina

After the enormous success of the 1st ICPCN conference held in India this year we are delighted to announce the dates and location for the 2nd ICPCN Conference to be held in the barrio of Palermo in the vibrant city of Buenos Aires, Argentina. Wednesday18th May has been set aside for pre-conference workshops with the conference proper starting on Thursday 19 May and finishing on the morning of Saturday 21 May. The conference languages will be English and Spanish, with professional translators provided throughout

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#Hats on for children’s hospice care

Hats-on-for-childrens-hospice-care-logo

Linking to this theme, the ICPCN would like to use the month of October to run the #Hatsonforchildren’shospicecare Social Media campaign that not only raises awareness of children’s palliative care but also recognises the various and valuable members of a children’s palliative care multi-disciplinary team, all of whom work together to provide holistic and coordinated care to the child and to the family

Who cares? We do!

We thought that the English idiom of “wearing many different hats” was most appropriate and applicable when describing children’s palliative care teams. Our question to you is, “If you are a member of one of these teams, what hat or hats are you wearing?”

We know that some members will wear many hats, for example, mothers with very sick children often become expert nurses, counsellors, teachers and dieticians.

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